Health literacy and vision-related quality of life. Muir KW, Santiago-Turla C, Stinnett SS, Herndon LW, Allingham RR, Challa P, et al. Development of the 25-item national eye institute visual function questionnaire. Mangione CM, Lee PP, Gutierrez PR, Spritzer K, Berry S, Hays RD, et al. Severity of visual field loss and health-related quality of life. McKean-Cowdin R, Varma R, Wu J, Hays RD, Azen SP, Los Angeles Latino Eye Study Group. A review of studies of the association of vision-related quality of life with measures of visual function and structure in patients with glaucoma in the United States. Khachatryan N, Pistilli M, Maguire MG, Chang AY, Samuels MR, Mulvihill K, et al. Impact of visual field loss on vision-specific quality of life in African Americans: the African American eye disease study. Grisafe DJ, Varma R, Burkemper BS, Xu BY, Torres M, Fairbrother-Crisp A, et al. Visual field defects and vision-specific health-related quality of life in African Americans and whites with glaucoma. Visual field loss impacts vision-specific quality of life by race and ethnicity: the multiethnic ophthalmology cohorts of california study. Grisafe DJ, McKean-Cowdin R, Burkemper BS, Xu BY, Torres M, Varma R, et al. Race and ethnicity differences in disease severity and visual field progression among glaucoma patients. Halawa OA, Jin Q, Pasquale LR, Kang JH, Lorch AC, Sobrin L, et al. Prevalence of open-angle glaucoma among adults in the United States. Residency programs should consider enhancing training regarding discussing patients’ quality-of-life.įriedman DS, Wolfs RC, O'colmain BJ, Klein BE, Taylor HR, West S, et al. The intervention did not significantly increase communication about glaucoma-related quality-of-life. Patients and providers rarely discussed the patient’s glaucoma-related quality-of-life. Glaucoma-related quality-of-life was significantly more likely to be discussed when African American patients saw African American providers ( p < 0.05). Patients with worse health literacy ( p < 0.001), more depressive symptoms ( p < 0.05), and more severe glaucoma ( p < 0.001) were significantly more likely to have worse vision-related quality-of-life. Patients initiated discussion 56.5% ( N = 13) of the time and providers 43.5% ( N = 10) of the time. Glaucoma-related quality-of-life was discussed during 12.3% of visits ( N = 23). One hundred and eighty-nine patients were enrolled. Audio recordings from these visits were transcribed and assessed for glaucoma-related quality-of-life discussions. Patients were randomized into intervention and control groups with intervention group members receiving a glaucoma question prompt list and watching a video before a provider visit. Patients completed a vision quality-of-life VFQ-25 assessment. MethodsĪdult African American patients with glaucoma who reported non-adherence to glaucoma medications were enrolled from three sites. The objectives of this study were to: (a) examine associations between patient socio-demographics and vision quality-of-life, (b) describe the extent to which eye care providers and patients discuss glaucoma-related quality-of-life, and (c) examine associations between patient and provider characteristics, whether the patient was in the intervention or usual care group, and whether the patient and provider discuss one or more glaucoma-related quality-of-life domains. Little is known about African American patient-provider communication about glaucoma-related quality-of-life.
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